Press

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2018

KRON4 Rare Disease Day

Moneyish – I’m racing against time to find a cure for my daughter’s rare disease Feb. 28, 2018

2017

Albany holds special day for 9 year old with rare condition

Albany parent honored for medical research advocacy

2016

What Every Dollar Means at Our Rare Disease Yard Sale

2015

2/12/15 KRON 4 Video

2/12/15 CBS SF Video

2/12/15 CBS San Francisco Article

2/17/15 Daily Californian Article

2/17/15 Fox KTVU Article

3/11/15 Contra Costa Times Article

3/11/15 Daily Democrat

3/14/15 South African People News Article

3/16/15 All For Women South Africa

3/16/15 The Times South Africa

3/16/15 Times Live South Africa

3/17/15 Daily Telegraph London

3/17/15 Inside Bay Area Article

8/18/15 Scary Mommy, Parenting is About Today

9/3/15 The Mighty Why We No Longer Ask, ‘What If?’ About Our Daughter’s Rare Disease

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